Forum ASBL Nos Enfants Cardiaques


 

[ Topic : Quel hôpital choisir pour opération TGV+CIV+Coarctation ??? ]
Sujet : Quel hôpital choisir pour opération TGV+CIV+Coarctation ??? Date : 03/11/2008, 19H38
Auteur :
isar
Bonjour,

Nous venons d'apprendre que notre BB est atteint d'une TGV + 2 CIV + Coarctation de l'aorte.
Sa naissance est prévue pour mi-février 2009 et d'ici là nous essayons de prendre un maximum de renseignements à propos des 2 hôpitaux de Bruxelles (Saint-Luc et HUDERF) qui opèrent ce type de malformation cardiaque.
Existe-t-il des chiffres témoignant de l'expérience d'un hôpital par rapport à l'autre (nombre d'opérations menées par an, taux de réussite, etc.)?
D'autre part, si l'une ou l'autre personne pouvait partager une expérience similaire, expliquer ses choix d'hôpital,les difficultés rencontrées, les conseils à donner,... Ce serait très sympa.
Nous sommes pas mal angoissés et souhaitons offrir les meilleures chances à notre enfant!
Merci, Isar
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarctation Date : 06/11/2008, 13H13
Auteur :
djevirgie
Bonjour,

ma fille Celya, atteinte d'une tretralogie de fallot,(atresie pulmonaire et CIV) a été opérée à St Luc et nous en sommes super contents. Les deux opérations se sont bien déroulées.

bisous et courage,

PS vous verrez tout se passera bien, il faut avoir confiance en la médecine de ce jour, le coeur est l'un des organes les mieux connus... comme on m'a dit : "le coeur est un moteur, il faut changer les pièces et ça repart"
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarctation Date : 11/11/2008, 09H48
Auteur :
mamanalice
Bonjour,
Les échos entre ces deux hôpitaux sont très bons. Cela se joue donc plus à la proximité par rapport à votre domicile et aux contacts personnels.
J'avais aussi appris la malformation cardiaque de ma fille à l'échographie morphologique. On a eu l'occasion de visiter les différents services (soins intensifs pédiatriques, pédiatrie...) avant la naissance. Peut-être que vous pourriez faire cela dans les deux hôpitaux afin de voir où vous vous sentirez le mieux. C'est important parce que votre petit bout aura besoin de vous.
Bon courage et bonne fin de grossesse.

maman d'Alice

Profil membre
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarct Date : 16/11/2008, 18H30
Auteur :
romcer
Bonjour,

Ma fille est née avec une TGV, CIA,CIV + une inversion des ventricules. Toutes ces malformations n'ont été détectées qu'après 9 jours de vie et par hasard. Pour le choix de l'hôpital, je rejoins mamalice , càd la proximité de la clinique. Maintenant, il est vrai que vous avez l'opportunité de choisir, n'hésitez pas à visiter les lieux et de choisir en fonction de votre ressenti. C'est important de vous sentir en confiance et à l'aise.
Pour notre part, nous avons choisi St-Luc. Aujourd'hui, ma fille à 4 ans et demi et se porte à merveille.

Je vous souhaite bonne chance, et à bientôt

Romcer
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarct Date : 16/11/2008, 20H37
Auteur :
loli.loup
bonsoir je suis la maman de maily .
j ai etee tres contente de st luc pour tout !vraiment rien a dire ...elle etee opree 2 fois a coeur ouvert :
cav complet + valve mitral.
et la 3 eme operation je la ferai encore a st luc.
je vous souhaite beaucoup de courage ... c est um moment tres tres difficile .dur pour votre bb.mais dur pour vous ...a bientot voir temoignage
loli.loup.
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarct Date : 18/11/2008, 12H55
Auteur :
MathieuD
Bonjour,

Je ne connais pas l'Huderf, mais je n'oublierai jamais l'humanité du personnel de Saint-Luc : professeur Rubay, docteurs Sluysmans, Stijns, Barrea, Detaille, Clément de Cléty, infirmières
Des gens formidables.

Bon courage
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarct Date : 20/11/2008, 20H34
Auteur :
Berlo
Bonsoir, moi mes 2 filles ont été opérées du coeur l'aînée 2 fois avec pose d'un pacemaker. Toutes les opérations ont eu lieues à Leuven et vraiment nous n'avons pas été déçus. On m'avait dit que Leuven possède une des meilleures équipes d'Europe pour les opérations cardiaques des enfants. Les autres hopitaux je ne connais pas. Maintenant nous n'avons cherché le plus près car rien à côté de chez nous il nous a fallu faire quasiment 150km (aller) mais bon maintenant nos filles sont là et en pleine forme...
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarct Date : 04/01/2009, 16H49
Auteur :
lili11
bonjour à tous,

je suis la maman d'une petite lili qui a aujourd'hui 5 mois. elle est née le 28 juillet 2008 à st Luc avec une CIV et une coarctation. notre petite poupée s'est faite opérée à 3 jours de vie pour sa coarctation mais le chirurgien n'a pas pu la "réparer" car problème. le lendemain elle est repartie pour une opération a coeur ouvert. ça passe ou ça casse, elle ne pèse que 3,320kg et c'est déjà sa deuxième interventon!! a ce moment là, la terre s'arrète de tourner, vous subissez, vous espérez, vous priez mais par dessus tout vous croyez en elle, en cette force qu'elle vous transmet.. elle forte ma princesse, elle est là,forte,vivante, on a pas le droit de baisser les bras,ni de douter, elle va revenir,encore plus forte... en effet, elle reviendra à la fin de la journée, avec le thorax ouvert et un pacemaker..
je vous passe les détails, car ce fut long et douloureux, 5 semaines d'hopital soit 37 jours de prières, d'amour, d'espérance et de tendresse. je ne vous cache pas qu'a ce moment là, malgré qu'elle était en vie et qu'elle ne cessait de se battre et de nous donner des leçons de courage j'en ai voulu aux médecins, aux infirmières qui croyaient mieux faire que moi et qui savaient mieux que moi..tout devait bien se passer, et rien a été comme prévu mais au bout du compte elle est là ma lili, vivante, épanouie, heureuse, belle, joyeuse alors pour toutes ces raisons je dis merci à tous, et particulièrement au professeur RUBAY, qui a sauvé ma fille.. Merci...

Rv

Profil membre
Sujet : Re : Quel hôpital choisir pour opération TGV+CIV+Coarct Date : 04/01/2009, 16H53
Auteur :
lili11
bonjour à tous,

je suis la maman d'une petite lili qui a aujourd'hui 5 mois. elle est née le 28 juillet 2008 à st Luc avec une CIV et une coarctation. notre petite poupée s'est faite opérée à 3 jours de vie pour sa coarctation mais le chirurgien n'a pas pu la "réparer" car problème. le lendemain elle est repartie pour une opération a coeur ouvert. ça passe ou ça casse, elle ne pèse que 3,320kg et c'est déjà sa deuxième interventon!! a ce moment là, la terre s'arrète de tourner, vous subissez, vous espérez, vous priez mais par dessus tout vous croyez en elle, en cette force qu'elle vous transmet.. elle forte ma princesse, elle est là,forte,vivante, on a pas le droit de baisser les bras,ni de douter, elle va revenir,encore plus forte... en effet, elle reviendra à la fin de la journée, avec le thorax ouvert et un pacemaker..
je vous passe les détails, car ce fut long et douloureux, 5 semaines d'hopital soit 37 jours de prières, d'amour, d'espérance et de tendresse. je ne vous cache pas qu'a ce moment là, malgré qu'elle était en vie et qu'elle ne cessait de se battre et de nous donner des leçons de courage j'en ai voulu aux médecins, aux infirmières qui croyaient mieux faire que moi et qui savaient mieux que moi..tout devait bien se passer, et rien a été comme prévu mais au bout du compte elle est là ma lili, vivante, épanouie, heureuse, belle, joyeuse alors pour toutes ces raisons je dis merci à tous, et particulièrement au professeur RUBAY, qui a sauvé ma fille.. Merci...

Rv

Profil membre
Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 10/07/2015, 05H53
Auteur :
assreed65756765
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Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 08/12/2016, 04H48
Auteur :
cpp
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Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 24/04/2017, 12H12
Auteur :
whn 123
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That the generous palm of www.burberry-outlets.net.co/ the www.hollisterclothingstore.org/ master a www.co-aol.com/ look www.christianlouboutin-shoes.ca/ Lu Xiao www.roshe-run.co.uk/ frown will http://thunder.nba-jersey.com/ be embarrassed www.asicsoutlet.us.org/ scratching www.long-champoutlet.com/ his www.toms--outlet.com.co/ head, blushing, said: "ah, http://steelers.nfljersey.us.com/ the classmates http://spurs.nba-jersey.com/ embarrassed, I http://warriors.nba-jersey.com/ shot www.converses-outlet.com/ may not be important, www.burberrys-outletonline.com/ students should www.mk-outletonline.us/ not www.polos-outlets.com/ be surprised." http://mavericks.nba-jersey.com/ Lu Xiao www.true-religions.com/ looked www.oakleysoutlet.it/ up in http://76ers.nba-jersey.com/ front http://michaelkors.euro-us.net/ of this Boy, www.philipp-plein.us.com/ keep www.timberland-boots.com.co/ a www.timberlandshoes.net.co/ clean short hair, www.toms-shoe.us.org/ about one www.scarpehogans.it/ meter http://giants.nfljersey.us.com/ more than eight of www.soft-ballbats.com/ the www.outlet-burberry.net/ height, correct http://celtics.nba-jersey.com/ facial features www.coach-outlet.store/ give www.toms-shoes-outlet.us/ a www.air-huaracheshoes.co.uk/ sunny cheerful feeling. www.pulseraspandora.com.es/ The www.prada-shoes.com.co/ first http://hawks.nba-jersey.com/ impression is pretty http://redskins.nfljersey.us.com/ good. Looking at http://vikings.nfljersey.us.com/ Lu www.juicycouture.com.co/ Xiao www.designer-handbags.cc/ looked at www.michaelkorsoutletonline.net.co/ themselves, http://raiders.nfljersey.us.com/ the www.puma-shoesoutlet.com/ boy blushed www.oakleysunglasses-canada.ca/ to continue http://jaguars.nfljersey.us.com/ to say: "with www.nba-shoes.com/ the students if you www.valentino-shoesoutlet.us.com/ do http://bears.nfljersey.us.com/ not www.burberry-bags.net/ feel www.tnf-jackets.us/ ... www.basketballshoes.com.co/ not www.woolrich-clearance.com/ comfortable www.under-armouroutlet.com/ ... www.instylers.us/ can www.oakley-sunglasses.mex.com/ shoot http://panthers.nfljersey.us.com/ me." http://clippers.nba-jersey.com/ While www.michael-kors.cc/ talking, the www.nike-store.dk/ boy www.poloralphlaurenoutlet.net.co/ turned around His back www.christianlouboutin.org.uk/ against the www.p90xs-workout.com/ land Xiao. Well, www.truereligion-outlet.us.org/ more than http://saints.nfljersey.us.com/ a www.oakley-outletonline.com.co/ trace of www.raybans.org.es/ silly. Lu www.burberry-store.com/ Xiao www.levisjeans.com.co/ on www.bcbg-dresses.net/ his first impression www.michaelkors-store.us.org/ of a www.toms-outletonline.com.co/ more evaluation. http://pacers.nba-jersey.com/ "No, www.nikefree5.net/ what www.celine-bags.com/ do you www.nikeshoes-outlet.com/ have for www.nike-air-max.com.au/ your classmates?" Lu www.ralphs-laurenpolo.co.uk/ Xiao said www.truereligion-outlet.com.co/ with a smile. www.jimmy-chooshoes.com/ Heard www.prada.com.de/ Lu Xiao to answer www.nike-air-max.com.de/ themselves, the www.christian-louboutinshoes.in.net/ boy smiled www.pandorajewellery.com.au/ and www.christianlouboutinshoesoutlet.org/ scratched his www.ralphlaurenonlineshop.de/ head: www.soccers-shoes.net/ "There www.newoutletonlinemall.com/ is www.omega-watches.com.co/ nothing, I have www.oakley.com.de/ just www.polos-ralphlauren.com.co/ heard www.marc-jacobs.us.com/ the instructor assigned to www.dsquared2s.com/ you http://coach.blackofriday.com/ to www.hollisteronlineshop.com.de/ the http://rayban.blackofriday.com/ 204 www.hollisters-canada.ca/ bedroom, www.tommy-hilfigers.de/ good coincidence www.omegas-relojes.es/ I www.new-balance-schuhe.de/ was www.ralph-laurenpolosoutlet.com/ 204, www.new-balancecanada.ca/ would www.nike-shoescanada.ca/ like http://pelicans.nba-jersey.com/ to call www.polo-ralph-lauren.de/ you www.cheap-jordans.net/ know." Listen www.cheap-watches.in.net/ To the www.michaelkors-canadaoutlet.ca/ boy that www.cheap-mlbjerseys.us.com/ he www.cheapjerseys.us.org/ is www.ray-banssale.com/ also www.barbours.us.com/ 204 bedroom, http://broncos.nfljersey.us.com/ Lu Xiao surprised www.givenchy.com.co/ to www.hermesoutlet.shop/ say: "so http://bulls.nba-jersey.com/ clever, www.true-religion-jeans.com.co/ that go www.adidas-shoes.nl/ together, www.michaelkorsoutlet.se/ hello, http://seahawks.nfljersey.us.com/ my name Lu www.nike-store.in.net/ Xiao, brave www.converse-shoes.net/ Xiao." www.hermes-bags.net/ Finished out of hand. 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Lu Xiao http://chiefs.nfljersey.us.com/ while thinking http://magic.nba-jersey.com/ about these www.air-huarache.co.uk/ side www.beats-by-dre.com.co/ quickly www.rolexwatches-canada.ca/ stepped www.uhren-stores.de/ forward to www.zcoachoutlet.com/ follow www.burberry-outletcanada.ca/ the pace http://ravens.nfljersey.us.com/ of www.toryburchsale.com.co/ Qin www.tomsshoes-outlet.us.org/ Yong.

www.rolexwatchesforsale.us.com/
whn
Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 15/10/2017, 22H44

Auteur :
clintons9
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Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 16/11/2017, 09H33

Auteur :
amyk0904
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Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 05/12/2017, 19H36

Auteur :
amyk0904
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Sujet : Re : Quel h&244;pital choisir pour op¨¦ration TGV+CIV+Coarct Date : 09/12/2017, 17H25

Auteur :
carlm50
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www.pandoraringsofficial.us.com/ Pandora Rings
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www.pandorajewelryofficialsite.us.com/ Pandora Official Site
www.northfacesjackets.us.com/ The North Face Jackets
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Sujet : jianbin1014 Date : 13/10/2017, 12H00
Auteur :
jianbin1014
jianbin1014
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