Forum ASBL Nos Enfants Cardiaques


 

[ Topic : civ membraneuse ??? ]
Sujet : civ membraneuse ??? Date : 22/07/2003, 11H52
Auteur :
mathis
mon petit garcon a 3 jours et on c'est rendu compte d'une civ membraneuse!!! pouvez vous s'il vous plait me donner le plus de renseignement possible au sujet de cette malformation ( quel sont les risque a long terme ? )

merci de votre aide je suis paniqué...
Sujet : Re : civ membraneuse Date : 22/07/2003, 23H26
Auteur :
nathalieet francis
Bonsoir,


Je m'appelle Nathalie et je suis la maman de Victorine qui a également une malformation cardiaque. Je suis désolée car je ne sais vous aider sur ce problème.
Mais avec ce petit message, je veux vous apporter plein d'espoir et de soutien.
Gardez force et courage votre petit bonhomme en a fortement besoin.
Amicalement.
Sujet : Re : civ membraneuse Date : 11/01/2008, 17H32

Auteur :
lolote4918
bonjour
mon petit fils rentre a l'hopital pour se faire opere d'une CIV. je ne sais pas si le faite de rajouter membraneuse a beaucoup d'imporatnce. Il va se faire operer le 18/01/, et il va a l'hopital Marie lannelongue a Paris.
courage, ce genre de maladie a l'air tres frequente et les operation reussissent en general

leray laurence

Profil membre
Sujet : Re : civ membraneuse Date : 30/01/2008, 20H41
Auteur :
tinou2
bonjour la maman de mathis

je suis la maman de martin qui a 9 mois
il a aussi une civ ( communication intra ventriculaire) c 'est un petit trou entre les 2 ventricules de mathis
le plus souvent possible, il referme le petit trou et c'est terminé! pour les médecins c'est un eopération banale même si aux yeux d'une maman c'est une cathastrophe!!! la vie s'écroule le jour où l'on vous annonce et les jours qui suivent ne sont pas tjs très faciles à vivre!
d'après ce que je sais, les risques à long termes ne sont pas importants, il n'y a pas de risque cérébraux, ni physique
je ne sais pas comment se porte votre petit prince mais pour le mien ce n'est pas facile de lui faire prendre du poids, il mange très très très difficilement depuis sa naissance et les jours sont parfois difficiles. avez vous des questions précises à me poser? si oui je suis à votre entière disposition et vous répondrai avec plaisir! à bientot
Sujet : Re : civ membraneuse Date : 03/07/2008, 12H19
Auteur :
quentlolo
Bonjour,
Je suis la maman d'une petite Jeanne née le 19 avril 2008.
Quelques jours après sa naissance, on nous a annoncé qu'elle avait une anomalie cardiaque, plus précisement une CIV.
Jeanne n'a jamais beaucoup d'appétit... Au début je l'allaitais... elle buvait 5 min et puis s'endormait.
Vers ses 6 semaines, nous avons commencé à lui administrer un traitement.
Il y a maintenant +/- 3 semaines, elle a été admise en pédiatrie durant 1 semaine, car elle avait perdu du poids.Elle a dû être transfusée.
Au retour à la maison, Jeanne buvait des biberons de 120 ml (un exploit...!!).
Depuis maintenant 1 semaine, elle recommence a ne plus boire beaucoup. Je dois la forcer à prendre 90-100 ml !!!
Son pédiatre-cardiologue parle à l'heure actuelle d'une opération vers 5-6 mois!
Sujet : Re : civ membraneuse Date : 10/07/2008, 20H22
Auteur :
laylazin
Bonjour Quentlolo,
Ma fille est née avec une large CIV détectée in-utero. Contrairement a votre petite fille, elle ne l'a pas supporté bien longtemps et a du se faire opéré a 26j malgré son petit poids (2.5kg).
Si votre cardio pediatre n'envisage une operation que vers 5-6 mois, il y a certainement une raison, vous devriez lui demander et poser toutes les questions pour vous rassurer. D'après ce que j'ai pu lire, chaque bébé est different et certain peuvent vivre plusieurs années avec une CIV avant de se faire opérer. Je sais pour etre passer par là que ce ne sont pas des moments faciles, mais nous avons beaucoup de chance car la CIV isolée est considérée comme une cardiopathie la moins grave et est parfaitement curable avec 1 seule operation (par ailleurs bien maitrisée). Je vous souhaite bcp de courage, vous verrez votre petite fille va vs epatez! N'hesitez pas a me contacter si vs le souhaitez. Layla.
Sujet : Re : civ membraneuse Date : 08/12/2016, 07H57
Auteur :
cpp
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Sujet : Re : civ membraneuse Date : 24/04/2017, 11H00
Auteur :
whn 123
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whn
Sujet : Re : Pas de sujet Date : 10/07/2018, 05H35
Auteur :
shenyuhangseysus
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shenyuhang20180710
Sujet : Re : maman dun enfant cardiaque Date : 25/07/2018, 05H59
Auteur :
shenyuhangrdurdu458j
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shenyuhang20180725
Sujet : Re : maman dun enfant cardiaque Date : 19/10/2018, 13H39
Auteur :
oliverwest
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Message modifié le 19/10/2018 a 13H39, par oliverwest

Message modifié le 19/10/2018 a 13H40, par oliverwest

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