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[ Topic : Pas de sujet ]
Sujet : Pas de sujet Date : 19/11/2007, 21H36
Auteur :
tinou2
hello

bonjour à toutes,

nous avons des nouvelles pour notre petit martin après le résultat du KT. le docteur Moniotte ne veut pas opérer martin en ce moment car les différentes pressions de son coeur ne sont pas du tout élevées. ses poumons ne sont pas en danger pour le moment alors ils ont décidés tous ensemble d'attendre un maximum de temps afin que notre petit bout prenne un peu plus de poids! ils nous parlent tous de 3ans mais dans la tête d'une maman comment est-ce possible d'attendre encore plus de 2ans tout en sachant qu'on devra l'opérer à coeur ouvert? je vous rappelle que martin a un canal atrioventriculaire complet avec une grande composante c'est à dire un trou entre les deux oreillettes et deux trous entre les deux ventriculaires. mais combler le tout, à la place de 2 valves, il en a une seul grande. le traitement aux médicaments est de plus en plus lourd et on se demande comment on va tenir?
avez vous dû attendre aussi longtemps avant la date d'une opération à coeur ouvert?
merci de votre aide et je vous le rappelle je suis entièrement à votre disposition pour tous conseil!
à bientot la maman de martin
Sujet : Re : Pas de sujet Date : 20/11/2007, 09H29
Auteur :
virgiedje
Bonjour
je suis la maman de Celya, qui a 15 mois elle a une tétralogie de fallot, elle a été opérée à la naissance d'un shunt (palliatif dans l'attente de l'opération réparatrice), on a fait un KT la semaine dernière, et le Dr Barrea a décidé de faire l'opération à coeur ouvert ce mardi 11 décembre prochain. Quel âge à votre boutchou??tourne
Sujet : Re : Pas de sujet Date : 21/11/2007, 16H52
Auteur :
quilouq
salut Virginie, on ne se connait pas beaucoup... mais ta maman m'a déjà un peu parlé de ta petite Ceylia... je suis la maman de Léo qui a maintenant 6ans et demi et qui est en super forme... après avoir subi un cathé à l'âge de 2 jour puis une opération 2 jour après... et une opération à coeur ouvert à l'âge de 4ans et demi! Je comprends bien ton inquiétude, ton stress et toutes les questions que tu te poses... ce sont des moments bien difficiles à surmonter mais tu sais, l'équipe médicale de st luc est vraiment vraiment superbe. Je te souhaite plein de courage et je crois que tu sais comment me contacter... Je pense bien à toi . Bisous à ta petite Ceylia ;-)
Sujet : Re : Pas de sujet Date : 22/11/2007, 09H09
Auteur :
virgiedje
Je n'avais pas vu ton message avant de t'appeler hier soir, c'était un pur hasard et je tiens à t'en remercier, ça m'a fait un bien fou. Reste maintenant à attendre ce mardi 11 décembre que je redoute tant. J'espère que l'opération se déroulera assez tôt le matin, j'ai pas envie de stresser toute une journée. Peut-on connaître l'heure d'intervention avant ou c'est seulement la veille que l'on nous donne l'info?
A bientôt,

Virginiecoeur
Sujet : Re : Pas de sujet Date : 23/11/2007, 19H32
Auteur :
quilouq
coucou Virginie,
Tout d'abord, milles excuses pour avoir très mal écrit le prénom de ta chipette ;-)
Pour répondre à ta question: nous savions que l'opération de Léo se déroulerait tôt le matin depuis la dernière visite mais ce n'est vraiment que la veille de l'opération, lorsque nous avons rencontré le Dr Rubay, chirurgien, que nous avons appris l'H exacte... mais comme les enfants partent au bloc opératoire à jeun, ils les prennent très tôt.Si tu as d'autres questions, n'hésite pas... je ne suis pas loin...
Je t'envoie plein de courage... Bisous coeur
Sujet : Re : Pas de sujet Date : 30/11/2007, 19H02
Auteur :
tinou2
bonjour,

Martin a 7 mois, et sa prise de poids est très très difficile. on nous parle de lui mettre une sonde de gavage mais dans mon esprit et dans celui de mon mari ce n'est pas du tout d'actualité! c'est difficile d'imaginer son enfant avec un tuyau dans le nez et le gaver comme une oie! êtes vous passée par là? si comment l'avez vous vecu et votre petit amour?
Sujet : Re : Pas de sujet Date : 08/12/2016, 08H25
Auteur :
cpp
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Sujet : chenlina Date : 24/01/2018, 03H15
Auteur :
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