Forum ASBL Nos Enfants Cardiaques


 

[ Topic : quel hopital choisir??? warning ]
Sujet : quel hopital choisir??? warning Date : 14/10/2004, 21H40
Auteur :
stephetthomas
Mon fils a une Tétralogie de Fallot, le cardiologue m'a dit que son opération se ferait à l'hopital des enfants Reine Fabiola à Bxl. Mais je vois que la plupart des bébés qui ont le même problèmes se font opérer à St-Luc. Quels est le meilleurs, St-Luc ou Reine Fabiola???
Sujet : Re : quel hopital choisir??? Date : 15/10/2004, 13H09
Auteur :
kileine
Quand il a fallu décider où hospitaliser Clarice, qui a aussi une tétralogie de Fallot, les médecins nous ont conseillé St Luc nous disant que c'était le top au niveau cardiaque. Nous nous sommes suivis pas le professeur Sluysmans à St Luc.

Lors du séjour de Clarice 5 jours après sa naissance j'ai trouvé l'équipe des infirmières super disponibles et très attentives. Au niveau des médecins, il faut savoir que St Luc est un hôpital universitaires et donc que les médecins passent en groupe deux fois par jour pour voir les patients. Certains ont l'impression d'être des phénomènes de foire, moi je trouve super qu'il y ait plusieurs personnes qui se concertent avant d'intervenir et lors des interventions.

Clarice rentre lundi à St Luc et si le cathétérisme m'angoisse, je sais que le soutien, l'expérience et le professionnalisme je l'aurai.

Maintenant je ne connais pas l'hôpital Reine Fabiola...

Bon courage et faites confiance à votre bébé
Sujet : Re : quel hopital choisir??? Date : 15/03/2005, 14H27
Auteur :
isalexis
Bonjour,

Je suis nouvelle sur le site..... que je viens de découvrir....

Je ne connais pas du tout St-Luc mon fils âgé de 7 ans est né, a été opéré d'une coarctation et d'une CIV à la KUL Leuven.
C'est un miraculé paraît-il.... j'ai tjrs été très satifaite de cette hopital même si je ne parle pas le néerlandais ils son ttrès aimables...

Bien à vous

Isa
Sujet : Re : quel hopital choisir??? Date : 18/03/2005, 14H48
Auteur :
macharlotte
coeur bonjour,
quand charlotte est nee a la citadelle on nous a conseille saint luc car sa malformation etait rare et seul le pr.rubay pouvait l'operee....
bien a vous
stephanie

maman de charlotte

Profil membre
Sujet : Re : quel hopital choisir??? Date : 18/03/2005, 16H07
Auteur :
isalexis
Quelle malformation avait-elle?
Sujet : Re : quel hopital choisir??? Date : 24/03/2005, 10H25
Auteur :
macharlotte
coeur bonjour.
artresie pulmonaire tronc communs....
bien a vous


maman de charlotte

Profil membre
Sujet : Re : quel hopital choisir??? Date : 13/04/2005, 13H23
Auteur :
mazette
je suis maman d'un petit garçon de 3 mois qui a la tétralogie de fallot. Il est suivi à la citadelle (liège)depuis sa naissance. Le pédiatre cardiologue qui le suit m'a dit que son opération serait réalisée à l'hôpital reine fabiola. J'entends aussi beaucoup parlé de St Luc mais je crois que cela dépend de la personne et de l'hôpital qui suit l'enfant. En effet, un hôpital catholique envoit ds les catho et les libres dans le réseau libre. Si une personne peut aussi me renseigner sur l'hôpital reine fabiola.
Merci d'avance.
Et si vous pouvez me rassurer par vos témoignages

steph

Profil membre
Sujet : Re : quel hopital choisir??? Date : 10/05/2005, 12H48
Auteur :
mamy pipoune
Mon petit fils a été opéré et est suivi par l'hôpital des enfants REINE FABIOLA.
Il est suivi régulièrement par l'équipe du Professueur VIART, Dr; DESSY, DR. RONDIA.
Ses parents et moi-même ( infirmière de formation) ont une entière confiance.
Sujet : Re : quel hopital choisir??? Date : 11/05/2005, 13H49
Auteur :
mazette
mon petit bébé qui a maintenant 4 mois (qui souffre d'une tétralogie de fallot)subira un cathétérisme au mois de juin à l'hôpital reine fabiola. Son opération est prévue pour la mi-juillet. J'ai contacté la dame responsable du service social de cet hôpital et elle m'a envoyée un petit document très bien fait. Cela explique les services, l'encadrement et les examens que vont subir Aurélien. Cela rassure beaucoup.
Steph

steph

Profil membre
Sujet : Re : quel hopital choisir??? Date : 12/05/2005, 21H12
Auteur :
stephanieetthomas
bonjour steph,

si tu loges à la maison des parents, je te conseille de réserver une semaine à l'avance.
Tu verras le personnel est très chouette.
Bon courrage à Aurélien, à toi et ton mari.

Gros bisous Stéphanie
Sujet : Re : quel hopital choisir??? Date : 18/05/2005, 09H03
Auteur :
mazette
Merci beaucoup pour cette information. On ne sait pas encore comment on va s'organiser pour le logement mais on va y penser.
Mais avant sa grosse opération qui aura lieu à la mi-juillet, Aurélien doit subir un cathétérisme pour évaluer la grosseur de l'artère pulmonaire. Il devra rester 3 jours (début juin) sur place et je pourrais loger avec lui dans sa chambre.
Voilà j'espère que Thomas va bien et qu'il commence à prendre un peu de poids.
Bisous
Steph

steph

Profil membre
Sujet : Re : quel hopital choisir??? Date : 19/09/2006, 23H35
Auteur :
arween
Bonjour.
Mon bébé est né à Brugman et a été opéré à 5 jours à l'Hôpital Reine Fabiola. Il a du être réopéré à 8 mois. Les chirurgiens opèrent très bien, le service soins intensifs est super aussi. Par contre, le cardiologue qui l'a suivi là bas n'a aucun sens humain et ne se préoccupe absolument pas des parents. Pour cette raison, si un jour man enfant devrait encore se faire opérer, je demanderai un changement de cardiologue et je demanderai le Docteur Rondia qui me paraît mieux. Mais une fois sorti des soins intensifs, le service est médiocre. S'il doit se faire à nouveau opérer, il sera opéré à Fabiola mais après les soins intensifs je demanderai un transfert à Saint Luc.
Actuellement il est suivit à La Citadelle à Liège.
Je ne suis pas entièrement satisfaite de l'hôpital Fabiola. Manque de psychologie. Quand j'ai appris que mon enfant allait être à nouveau opéré à 8 mois, j'ai fondu en larme, le cardiologue m'a regardé étonné et m'a dit "Mais madame qu'est-ce qui vous tracasse? Ce n'est rien du tout". J'ai cru que j'allais le coller au mur, mais je n'en avait pas la force. En attendant il allait être pour la 2ème fois opéré à coeur ouvert, pour lui ce n'était rien du tout. Bonjour la psychologie. Là bas, on opère l'enfant, puis on passe au suivant sans se préoccuper des parents. Je n'ai jamais vu le chirurgien qui a opéré mon enfant. J'en ai vu d'autres mais pas celui là. Ce sont toutes ces choses qui font que parfois je doute de cet hôpital.
Sujet : Re : quel hopital choisir??? Date : 17/09/2007, 11H23
Auteur :
Thilaeloemele
Bonjour,
Je suis la maman d'Eléanore qui a un soucis cardiaque. Dès sa naissance, elle a été prise en charge à Saint-Luc. Opérée à 4 jours d'un shunt et ayant eu un soucis au soins intensifs, nous sommes très content qu'elle soit suivie à Saint Luc car les infirmières le Dr Barrea ainsi que les soins intensifs sont très humains.

Laurence

Profil membre
Sujet : Re : quel hopital choisir??? Date : 17/09/2007, 20H39
Auteur :
Do03
Bonsoir...

Je dirais sans hésiter et par expérience, St Luc.. Le chirurgien Mr Rubay est super, et l'équipe de cardiologue aussi (Merci Docteur Barréa).
Flavio a été opéré à 5 jours, puis à 4mois et nous attendons la prochaine dans les mois qui arrivent. Flavio a maintenant 10 mois.

A bientôt et courage pour la suite...hello
Sujet : Re : quel hopital choisir??? Date : 25/09/2007, 16H56
Auteur :
zin
Hello
Ma fille s'est fait opérée à l'Hopital des Enfants reine Fabiola, elle etait agée de 25jours (CIV-CIA), son cardiologue est tout simplement super, toute l'equipe du service cardiologie est très humaine et chaleureuse. Ils sont disponibles. Nous avions pu rencontrer le chirurgien également. Le séjour en soins intensif s'est très bien déroulé aussi (equipe tout aussi chaleureuse, humaine et disponible pour les parents). Par contre, notre fille a été tranférée à Erasme pour terminer sa convalescence. Effectivement le service (salle65) ou les enfants opérés du coeur sont hospitalisé après les soins intensifs n'est pas propice a la serenité et au repos. Notre y a séjourné juste la nuit précédent son opération. Personnellement je recommenderait quand même l'HUDERF car l'essentiel y est : une equipe de cardiologie très professionnelle et humaine.
Sujet : Re : quel hopital choisir??? Date : 26/10/2007, 13H36
Auteur :
virgiedje
Bonjour,

Celya notre fille est suivie à St Luc par le Dr Bareat, elle est en plein forme, et on est super satisfaits de leurs services, ils sont super humains et ne délaissent pas les parents. Maintenant, vous dire que St Luc est le meilleur hôpital, je ne peux pas, mais je ne peux que le remercier pour tout qu'il s'y passe.
Sujet : Re : quel hopital choisir??? Date : 10/07/2015, 07H34
Auteur :
sdsfds
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Sujet : Re : quel hopital choisir??? Date : 08/12/2016, 04H28
Auteur :
cpp
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www.michaelkors.so/
Sujet : Re : quel hopital choisir??? Date : 24/04/2017, 12H28
Auteur :
whn 123
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